Sam Berns was born on October 23, 1996, in Providence, Rhode Island. At just over a year old, he was diagnosed with progeria, a rare genetic disease that causes rapid aging and early death. Despite the challenges he faced, Sam's parents, both pediatricians, were determined to give him the best possible life.
From a young age, Sam knew that he was different from other kids his age. He had to undergo various medical treatments and surgeries to manage the symptoms of progeria. Despite these obstacles, he remained positive and determined to live life to the fullest.
As he grew older, Sam became an outspoken advocate for those with progeria. In 2013, his journey was documented in an HBO special titled Life According to Sam, which shed light on the challenges he faced and the importance of raising awareness about this rare disorder.
Sam's story inspired people around the world to learn more about progeria and support research efforts to find a cure. He traveled to various events and conferences to share his experiences and educate others about the impact of the disease.
In 2006, Sam had the opportunity to meet Boston Bruins defenseman Zdeno Chara, who became a close friend and supporter. Their friendship brought more attention to the Progeria Research Foundation, which was established by Sam's parents to fund research and support families affected by the condition.
In 2013, Sam had the honor of performing the ceremonial puck drop at a Bruins game, further highlighting his positive attitude and determination to make a difference.
Sam Berns passed away on January 10, 2014, but his legacy lives on. His courageous spirit and advocacy efforts continue to inspire others to raise awareness about progeria and support ongoing research initiatives.
Through his resilience and determination, Sam showed the world that it's possible to overcome adversity with grace and strength. His impact on the progeria community and beyond is a testament to his unwavering commitment to making a difference.
Sam Berns may have left us too soon, but his memory lives on in the hearts of those who knew him and were touched by his story. His legacy serves as a reminder that no matter the obstacles we face, we can always find strength and hope in the face of adversity.
Related links