Lola Hartley was born on April 28, 2006 in Kansas, the youngest member of the Hartley family. She grew up alongside her siblings, older brother Cal and older sister Claire. From a young age, Lola faced challenges due to her and her sister's microcephaly, a condition caused by an Asparagine Synthetase Deficiency inherited from both her mother, Gwen, and her father, Scott.
In 2011, Gwen, Lola's mother, started a family blog called The Hartley Hooligans, where she documented their family's journey raising Lola and Claire. The blog became a platform to raise awareness about microcephaly and provide support to other families facing similar challenges.
Both Lola and Claire were diagnosed with microcephaly at a young age. This condition impacted their cognitive development and motor skills, requiring specialized care and support from their parents and medical professionals. Despite the challenges, Lola and her family remained resilient and determined to provide the best possible life for her and her sister.
Lola Hartley's parents played crucial roles in her upbringing. Gwen, her mother, was a blogger who shared their family's story with honesty and vulnerability. Scott, her father, was a skilled glass blower who supported his family both emotionally and financially. Together, they created a loving and supportive environment for Lola and her siblings.
Lola's upbringing was enriched by the presence of her older siblings, Cal and Claire. Although they faced unique challenges as a family, they also shared cherished moments and experiences that strengthened their bond and shaped Lola's outlook on life.
Despite the difficulties that came with her diagnosis, Lola Hartley inspired many through her resilience and positive attitude. Her story, shared on The Hartley Hooligans blog, touched the hearts of readers around the world and highlighted the importance of unconditional love and acceptance in families facing adversity.
Lola's legacy lives on through the impact she made on those who followed her story. Her journey taught many about the power of perseverance and the beauty of unconditional love. While she may no longer be with us, her spirit continues to inspire others to embrace life's challenges with grace and courage.